Category Archives: Radiotherapy

Has anybody seen my sweet silver girl?

OK, fine, this one doesnt fit in with the general blog sequence, but given it relates to a picture taken of me today, and is something a bit silly, and fun, and its posted everywhere else but the blogs, I thought I’d throw it up quickly here.

As mentioned yesterday, I decided not to bother with waiting for the hair to fall out, I decided to get rid of most of it yesterday, as the silver bob wig had arrived, and roll with that while at home for weekend. I also have a very old (nearly 15 years old) silver Lycra bodysuit, which I can report I can still get into, though the zip no longer functions, hardly a great surprise. But anyway, put the two together, along with a silver top, to help keep me warm, and…arrange to get a photo taken, this one in fact,

robot me

Now the wig isnt amazing, but given it cost about £7 ($10). thats hardly the biggest shock in the whole world, but it will do for this. The ‘bulge’ is actually the connection point for the zip on the back brace, in case anyone thought it might be another trans girl issue, lol. No, believe me, that is miniscule nowadays!

The amusing moment from all this is that the 2 better quality redhead wigs were marked to be delivered on Monday, so wearing this all day (given picture wasnt being taken until teatime) wasnt going to be a problem, as no one would be calling until then, and Linda knew the plan anyway. So yes, the doorbell goes about noon, its the delivery man with the parcel with the wigs in it. Not that I really cared, answered the door, got the parcel, and…he didnt say anything, but didnt hang around more than a few seconds either!

I must admit the silver lycra bodysuit with ‘extras’ had its advantages to wear, and its disadvantages too. The big advantage, extra support for my spine, which was heaven in truth, could do with at least a dozen (15?) with a working zip (sponsorship deal?), both for support, and for the fact that the table set up for treatment isnt designed to support a damaged spine, and they would help. Why so many? Well simply, 5 days a week, with 15-20 miles of travel in each direction for radiotherapy plus waiting for transport home afterwards, I’m not going to have time for matters like laundry and the like for the 6 weeks of radiotherapy. Oh, and lets face it, if you think I wont want to do more with a silver wig, and silver bodysuits, well… Email me at stephmajor8@hotmail.com if you want to help with that matter. Need to get suits in UK for delivery here soon, thats all, as treatment starts on 28th.

(Note for those getting both blogs, though not identical, close enough for most)

Fine, video. Not Dawn’s greatest hit, by any stretch of the imagination, but the title tweak works, OK?

 

 

 

My feelings still remain

To be honest, its worked out for the best that I had the taxi drive home from hell yesterday afternoon, which meant that all I wanted to do yesterday evening was have an evening watching baseball (though sadly the Dodgers lost, after I’d gone to bed), and not writing up blogs, as I can now cheat, and cover 2 days of news in one blog.

Oh, the taxi driver, no wonder the NHS funds are needed, because he cheated the route home so much, that fare must have been nearly double what it needed to be, but anyway. I was going to report him to Leeds City Council over it, but unsurprisingly, given everything now, I cant remember his licence number, so sadly he will now get away with it, but anyway…

Yesterday afternoon was the day the plan got sorted out, and signed off. I also delighted myself by finding out my walking distance without hurting myself, is getting better, though we are still talking in terms of about 100 yards, than London Marathon stuff, lol. Still, Occupational Therapy in Leeds on Friday morning will hopefully see a bit more improvement too. Other than that, a bit of Speech Therapy help to be arranged, not because words arent right, though still faint, more down to the fact that I have a dribble issue at moment, though even that seems far less today, good news. Other thing is a Social Help contact, to sort out things like Disabled Bus pass, postal vote stuff,and the  letter I need so that work can take the last step for medical retirement process. But as that couldnt be done before I agreed plan yesterday afternoon…

Plan is to start Radiotherapy in about 3 weeks time, for a period of 6 weeks, 5 days a week. Some might be shrewd enough to notice, that the exact start date is going to mean it might be over just before Christmas/New Year period, or just after, no guarantees either way, but holiday period, no treatments anyway, quite rightly. I will be doing Chemo tablets too during this period, and then do a few more of those in the 6 month period that follows too, but only a handful or so. I’ve been told that I need to allow about 4 weeks after that to get over the treatment, and then about a couple more weeks or so before contemplating flying or anything, all fine by me. Which in my eyes, gives me a probable date to do much at all as towards the end of February in likelihood. No promises on date, but it looks a fair date to me, with an anniversary on the horizon, March 15th, the first big seizure!

Just after the time, the lovely people at the guest house, sent me an email re the 3 nights that we never stayed there, saying the credit would stand for future use when I needed them. To be fair, I doubt they imagined it would take a year to get to that point, but it will. So, being the polite, and fair lady I am, I just asked if that date would still be fine to use it. Took about 20 minutes to get an email back confirming it would, so…Kudos to Pelham Lodge Guest House, Blackpool! No, Film Festival is later next year, but there is still the matter of the tram journey I never completed…

OK, end piece, got the call this morning, going to Leeds on Thursday afternoon to get measured for my plastic mask that will be used to direct the treatment to the needed area. Will also have CT, and blood test done on same trip, to give them the base settings they need pre treatment. As a few friends would know, I’d prefer a full face Iron Mask, rather than a positioned plastic one, but hey, its a start! Maybe the latter can follow post treatment, lol?

Right, to video now. One of my favourite groups of all time, one of their very early hits, live