Yes, the blog title is rather apt, as its all about mine! Its hard to believe now that just over 13 weeks ago (as clearly the Tuesday incident was first seizure, in hindsight), laugh for me was relatively normal for me, other than a busted back. The irony of that, and the more calamitous ones on the Friday was that I’ve had less literal pain from my back since then, but my mobility has gone to pieces, so I’m assuming that some connection between my brain, and my spine has got disrupted in some way? All the same, despite knowing it was going to be a while before I got to see an expert, due to the speed of things with the NHS, it was still a bit of a blow when I found out it wasnt going to happen to mid June, but yes, we’re almost there.
As, in fact I found out yesterday afternoon, when I was sat quietly on the settee, when the phone rang, which Eric answered. He did something with the dial (yes, its one of those retro phones, compatible with digital system to dial out, and stuff), and then handed me the speaker. It was some automated call from the appointment centre at the hospital, presumably to confirm my appointment a week later. Thing is, despite it doing the equivalent of dialling a 1, to say I was hear, it didnt pick up. Anyway, when it repeated the question to me, I did the same thing, with the same lack of effect. So the call cut off, presumably the equivalent of a ‘no answer’ or something.
I checked the number we were called from, but all I got was an automated voice saying that someone would call me within 24 hours as a repeat. Anyway, just over 24 hours later, no one had, so I tried the number on the appointment letter I got from the hospital, nearly 3 months ago! But it seems to talk to them, I needed a number that wasnt printed on my letter! So anyway, I got frustrated, tried to explain to him, and my voice disintegrated totally. Eventually he gave me a number for the actual hospital, but I couldnt have called them, my voice was blown by then. Yes, another reason I cant go back to work, clearly, one stressful call and my voice would be blown for hours! Not much good in a call centre!
As for next week, I cant deny I’m looking forward to the EEG, MRI and anything else they might throw at me that way for all the wrong reasons! Oh yes, weird things done to my brain, especially involving electrodes and chambers, cant wait! Yes, dont be surprised if I report that I imagined being brainwashed when the electrode cap was on me, and activated, for sure. As for what I might imagine being done to me, in a MRI tube, lets not consider! Sadly, the former is unlikely to brainwash me, and the latter turn me into a mindlessly obedient robot, but nothing’s perfect. Yes, I would love those, lets face it.
I try to wonder what they might find when they do the tests. Are they just going to decide its epilepsy (though the pills certainly didnt stop the later bout of seizures), or will it prove to be something more serious? Who knows, though there isnt a lot I can do, whatever it is. But I have to be honest, setting the steps to find out will be an absolute blessing, and might stop me worrying just how bad it is. The other blessing being, that once I know, I can work out when, or if I can do a few things I really need to sort out. Photo shoot, holiday planning, offering myself for mad scientist research? (I wish!)
I was tempted to ask a Psychic friend if she could tell me what my fate is, but firstly, I cant afford to call her (she’s in US), and secondly, is there a bit of me that really doesnt want to know? Mainly the former, I’m sure.
So no, I wont be there at the first day of Royal Ascot, dressed up in some posh hat and dress (wouldnt that be fun?), I’ll be at a hospital, in Huddersfield, awaiting my fate. Funny what a brain can do to you, lol.
Talking of which, the video. This song is slightly younger than me, but not much, its from 1965! Its why the film, and the song dont match, its a combined mix, thats all. Love, no idea what that is, but I now know how ‘funny’ brains can be!
Yes, you know how things are with life, for a while nothing happens, then all goes crazy, tell me about it! I know its a good thing, but pacing matters would be nicer. So now, I’m looking at a pretty lively week and a half, and not much time at home.
So lets start off with the event you knew about, and the one that occurs every fortnight at present. Yes, the latter is signing on at the Job Centre, on Friday morning. The other of course, is the trip to Loughborough, to take a look at a potential life as a student. Open day is on Saturday, but I’m going down Friday afternoon, so that I can make a decently early start down there, without having to leave here at “silly o’clock” to do so. Yes, really looking forward to it, though I have no idea quite what I’m letting myself in for.
But it’s today that the diary has really started to fill up, and in style. Early this morning, I got a call from one of the (many) recruitment agencies I’d applied to, for a job, I’ve made the short list. 🙂 Now the fun bit. This involves a 2 hour awareness meeting in Leeds tomorrow lunchtime, followed by a week (9-4) of preparatory training for the role. Fine, it will be different, something to freshen me up, but combined with the weekend trip, getting time to myself flies out of the window!
And then, to top all this off, when I got back from a trip to town this afternoon (get rent money and train ticket as I had vouchers that cant be used online), I have an email from another agency, about a job, asking me to ring them back. I did, did reasonably, and cinched the tests, but lets face it, that side of thing has never been an issue for me anyway. So now, I’m probably going to have to squeeze a telephone interview in somewhere, either tomorrow afternoon (given the potential employers wont even know the results until tomorrow morning), or Friday, before I head to the Job Centre! When, if I pass that, I do an in person interview, no idea!
But anyway, the poor telephone has been taking a hammering here, but hopefully not for much longer, one way or another. Talking of which, the video relates to that, though it is showing its age dramatically, with rotary dial phones, and typewriters!