To be honest, its worked out for the best that I had the taxi drive home from hell yesterday afternoon, which meant that all I wanted to do yesterday evening was have an evening watching baseball (though sadly the Dodgers lost, after I’d gone to bed), and not writing up blogs, as I can now cheat, and cover 2 days of news in one blog.
Oh, the taxi driver, no wonder the NHS funds are needed, because he cheated the route home so much, that fare must have been nearly double what it needed to be, but anyway. I was going to report him to Leeds City Council over it, but unsurprisingly, given everything now, I cant remember his licence number, so sadly he will now get away with it, but anyway…
Yesterday afternoon was the day the plan got sorted out, and signed off. I also delighted myself by finding out my walking distance without hurting myself, is getting better, though we are still talking in terms of about 100 yards, than London Marathon stuff, lol. Still, Occupational Therapy in Leeds on Friday morning will hopefully see a bit more improvement too. Other than that, a bit of Speech Therapy help to be arranged, not because words arent right, though still faint, more down to the fact that I have a dribble issue at moment, though even that seems far less today, good news. Other thing is a Social Help contact, to sort out things like Disabled Bus pass, postal vote stuff,and the letter I need so that work can take the last step for medical retirement process. But as that couldnt be done before I agreed plan yesterday afternoon…
Plan is to start Radiotherapy in about 3 weeks time, for a period of 6 weeks, 5 days a week. Some might be shrewd enough to notice, that the exact start date is going to mean it might be over just before Christmas/New Year period, or just after, no guarantees either way, but holiday period, no treatments anyway, quite rightly. I will be doing Chemo tablets too during this period, and then do a few more of those in the 6 month period that follows too, but only a handful or so. I’ve been told that I need to allow about 4 weeks after that to get over the treatment, and then about a couple more weeks or so before contemplating flying or anything, all fine by me. Which in my eyes, gives me a probable date to do much at all as towards the end of February in likelihood. No promises on date, but it looks a fair date to me, with an anniversary on the horizon, March 15th, the first big seizure!
Just after the time, the lovely people at the guest house, sent me an email re the 3 nights that we never stayed there, saying the credit would stand for future use when I needed them. To be fair, I doubt they imagined it would take a year to get to that point, but it will. So, being the polite, and fair lady I am, I just asked if that date would still be fine to use it. Took about 20 minutes to get an email back confirming it would, so…Kudos to Pelham Lodge Guest House, Blackpool! No, Film Festival is later next year, but there is still the matter of the tram journey I never completed…
OK, end piece, got the call this morning, going to Leeds on Thursday afternoon to get measured for my plastic mask that will be used to direct the treatment to the needed area. Will also have CT, and blood test done on same trip, to give them the base settings they need pre treatment. As a few friends would know, I’d prefer a full face Iron Mask, rather than a positioned plastic one, but hey, its a start! Maybe the latter can follow post treatment, lol?
Right, to video now. One of my favourite groups of all time, one of their very early hits, live
Anyone looking for cheery news, look away now! At least now I know what happened last Tuesday, though fine, I might wish I didnt. Yes, fine, I had a seizure, OK? How do I know this? Well, could be because I had another one on Friday, just maybe? On a Blackpool tram of all places, before I got to wear my ‘Clara Johnson’ dress and all. No, I dont remember a thing, and from what I’ve heard, thats for the better! So yes, the perfect place to spend your birthday, a hospital bed.
The good news, as you might have gathered by now, I live. The bad news, I have a distinct speech issue, which when thats your job, not good. To put it politely, I sound drunk. Considering I havent had alcohol in 18 months, thats not real. But it sounds that way, and when your voice is your job, I wont be working for a while, if not an awful lot longer. Doctor has already signed me off until end of April, and thats only for starters, clearly. Like the hospital staff, when I suggested early medication retirement (I am 61), the Doctor looked at me as if how I could be considering anything else. So yeah, PIP here I come! Oh fine, yes, my co-ordination is dreadful too.
I must say, that apart from one thing, the Blackpool Victoria Hospital was lovely to me, and the others visiting me. That one thing? Well, they stuck numerous canola’s into me, covered them up, then missed one at removal. Yes, its gone now!
So fine, what a week it was, after the week I was hoping for. No, I dont think I’m blaming Clara Johnson’s ghost for events, though I do wonder…? Probably the end for speaking roles, unless things improve dramatically with my voice, but makes me perfect for mannequin roles, or full body suit, non speaking parts, just saying…
Oh, do you want the biggest irony, the seizures have improved the state of my back! No idea why, but its true! But if its one, or the other, then yes, I’ll have the bad back! So yeah, that Clara Johnson moment remains a challenge!
OK, video time. Not quite as old as me, and yes, my dears, this is an old fashioned jukebox, complete with single record… But yes, its definitely been…
Its funny to think that on my first day, at age 60, was spent dress up as a 20’s Flapper (even more so, if planned dress had fitted) at the Blackpool Film Festival, and the last day of age 60, I’ll be back at the Blackpool Film Festival, this time doing the 30’s chorus girl look! So, one year on calendar, one decade on in look, and I can get my ‘Clara Johnson’ look moment, at 60, just about! I am also working the rest of the weekend there, if you’re in the area?
Question is, how many more? Even more so after yesterday, when I was sat in my room, settling down to watch a bit of the Cheltenham Festival, and then felt wobbly, and…
Next thing I knew, was Eric looking down on me, and asking if I was alright. I resisted the witty compliment, and working out I wasnt fine, given over 3 hours had passed since I was previously conscious. I retired to bed, and apart from bathroom stops, didnt really get conscious again under morning. I feel better now, though thats only relative, not right, but just better. Yes, it makes me wonder how much longer this body is going to last, probably not long? But as long as it lasts the weekend…?
OK, video time. What else but one from the Blackpool TV series
I know, ideally I would have written this on Friday, but like most things in this world, everything cant be perfect! Yes, Friday was International Woman’s Day, something that I wish that one day, like Pride, like Transgender Day of Remembrance, we dont need to celebrate, to make a point to some. Not because its not worth celebrating, it is, but that the need wont be relevant any more.
To be fair, things are a lot better now than they used to be for women, and I mean in terms of events far more recent than the freedom to vote, which of course we recently celebrated the centenary of. Over the decades, birth control, wage equality, and other various issues have been solved, or at least made an awful lot better for women than they were when I was young.
Of course, this is coming from the woman who would love to be the ‘Stepford’ housewife of the 1950’s, running the perfect marital home, and a dream cook to boot. Yes, seriously, I would need the robotic housewife makeover to be able to do all that, believe me. Mind, back then, I would have been able to retire at 60, which might have been handy, given my back gave out at 59 and a half (well, close enough)!
Not that I will be around to see it, but when the women starting out on their working lives now, reach my age, things will be more equal for them. There was actually an IWD event in Huddersfield yesterday that I got an invite too, and a possible chance to make a speech too, but unfortunately it clashed with the 1 Saturday in 5 that I have to work, but hopefully it works better next year, even assuming my back still allows me to work by then! I’ve heard it was popular, which was good news for me at least.
Right, just to let you know, as I will be doing on the other blog too. I’m off the next week (20th is next day I’m working), and with Blackpool, schedule might get a bit erratic during that period. You might get more (if events need it), or, at the end of the week, you might miss out on them too. But tomorrow, and maybe the next 2 days, you suggest suitable material, I’ll write about it, with the obvious exclusion of UK related politics at least! No, I dont expect any suggestions, but…?
OK, video time. The Eurovision song from 1973, in fact! So, power to all my friends, especially female ones, cisgender, trans, or non binary. Fine, every woman, lol! No, I dont mean in the voltage sense, but if anyone is offering…? 😉
Yes, 2 weeks from now, I’ll be in Blackpool, and for a few days at least, all the normal dates for blogs may not happen. Not because the internet isnt good in the Guest House I’ll be staying in (it is), but because I suspect I’m going to be a busy old lady for a few days, plus the layout of the room isnt great for things like typing long blogs, but anyway…
Seriously, if you have any chance of being in Blackpool, on the 15th March, you need to buy tickets for ‘That’s Entertainment’ that night, just to see what amazing outfit I’m dressed in. I’m not saying they will be as in the video, but hey, if thats what we’re teased with, as options, well who knows? 😉 You can get the greeting, and movie for as little as £10, and can get the full works, including the after show party, for £20, and no telling what a ‘saucy chorus girl’ might get up to then! Probably not a lot, but the only way to find out…?
For those wanting details of the weekend, and the chance to buy tickets, go to http://www.wintergardensfilm.co.uk/ to purchase.
Last night, the lovely lady who arranges our outfits for the night, teased us that she was looking into what we would be wearing on the night, and posted the video, which is about the last 2 and a half minutes of this, as a tease to us ladies that we would be getting something like these. I think she was expecting us all to say we couldnt wear something like that, but several of us (including me) just said to ‘bring it on’, even more so if including the headpieces. So yes, now she’s probably trying to find these sort of shimmery outfits lol, I just hope she remembers I need something with a bit of discreteness in the genital area, lol!
To be honest, to wear one of those, or similar outfits that chorus girl dancers like Clara Johnson wore, would be absolutely amazing. But fine, I admit it, wearing one of those crazy headpieces would definitely be as much fun to wear. I have worn some crazy costumes over the year (and hopefully will soon wear one more), but never worn anything like those on my head. Must be weird walking in them, but fine, I’d love to give it a try! Now, if someone can download some dancing skills into my mind, within the next fortnight, you have no idea how thrilled I would be!
Oh fine, the video. Feel free to suggest which outfit you’d love to see me in. I think the Hedy Lamarr one could work for me, as would cover up what needs to be covered up, looks amazing, and as for that starry headpiece…oh my!
I have set the video to where the gorgeous outfits start to appear, but feel free to go back to the start, if you wish