Purple pain

I must admit, this might not have been the first time I’ve heard about Epilepsy Awareness Day,  and just been so concerned about another Awareness Day (Transgender) at the end of March, that I simply havent reacted to it. It might also be the first time I’ve heard about it, but I suspect its the former. Its not hard to only get involved in these matters when it affects you directly, is it? Of course, before EEG, MRI, and whatever else, I dont actually have confirmation that it was epilepsy that caused my seizures, just that its a maybe. It may, at this point be more, or less, or who knows?

One thing is for sure, Friday will be interesting, as I need to go out to get my blood tests done at the doctor’s. After that, I need to (hopefully briefly) head into town, as I need to produce my note entitling me not to even consider working before the end of April, so that I can get my benefits in the interim. Should be ‘fun’ as even though I havent had any more seizures, I havent been stressing my body at all, plus mobility, and speech are still far from perfect, but boxes have to be ticked, so…

In truth, I’m probably ready to get out briefly, after more than a week indoors, but hopefully I’m not pushing my luck, all the same. But yes, its fair to say this year, I’m far more aware of Epilepsy awareness day, than ever before. Oh, the blog title? Guess which colour people are meant to wear to show support? Well, strictly its Lavender, but wouldnt you rather have Prince, seriously? So…

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